Hello from the Ozarks

[Dr.Mary]

Hello; I’m in the Ozark Mountains of the States. Happy to be here, thank you Oliver for helping me get signed up

I worked at a hospital a few years and always found myself in the Lab’s asking a lot of questions. I’m retired early now due to poor health and wish to learn more. I have a genetic condition called Ehlers-Danlos and I’m trying to learn how to get better or how to help others with this get better, just about every doctor I’ve seen doesn’t know what it is. The States are not as versed about it as they are in the EU.

I watched a video about the dna and how difficult it is to get a microscope to see something so small - these are the things I’m interested in, medicine and how the body works.

Thank you for having me here I look forward to getting to know you all!

[Rossf]

Hello Dr.Mary-Welcome to the group-I used to be a nurse for 30 years and have met people with your condition-sorry to hear you have to bear this burden.I suspect a disease with 13 subsets doesn’t help in pinning down all the information needed for better understanding and or possible treatment options-If you are just getting into microscopy it might be interesting to “study” some of the differences your skin presents-do you have the stretchy or velvety skin presentation? That could be interesting to observe under low power microscope objective to compare to skin of someone without your condition.Or atrophic scars..I always look at any healing wounds I have under the microscope for interest-but then I was a wound care specialist and just can’t stop myself!
I hope microscopy is a relaxing (and exciting) hobby that feeds your brain and reduces stress that I suspect is good to avoid with your condition. I googled the Ozarks and the national parks look amazing!
Regards ross

[zzffnn]

Hello; I’m in the Ozark Mountains of the States. Happy to be here, thank you Oliver for helping me get signed up

I worked at a hospital a few years and always found myself in the Lab’s asking a lot of questions. I’m retired early now due to poor health and wish to learn more. I have a genetic condition called Ehlers-Danlos and I’m trying to learn how to get better or how to help others with this get better, just about every doctor I’ve seen doesn’t know what it is. The States are not as versed about it as they are in the EU.

I watched a video about the dna and how difficult it is to get a microscope to see something so small - these are the things I’m interested in, medicine and how the body works.

Thank you for having me here I look forward to getting to know you all!

There are some clinical trials going on in US on Ehlers-Danloa syndrome, if you search clinical trials.gov: https://www.clinicaltrials.gov/ct2/resu ... ity=&dist=

If nothing fits, you may Google biotech / pharma companies or university professors / doctors who specialize in that. They may offer some help.

You can still get a microscope, however I doubt it will be as helpful for you to learn about the condition. Specialized doctors can provide you medical articles to read on, if you like and ask.